Party Day

I'm off to a party today. It is a party to honor Tyre, Maggie's friend and prom date. Tyre passed away a year ago this week, about 8 months after Maggie did. So the two of them are together. Today they can look down on all of us and giggle, which is what they always did when they were together.

Here they are as prom dates - though this as taken in Tyre's hospital room. He couldn't get out in time for the prom, so we did pictures in his room. It's one of my favorite pictures and is displayed in my dining room. I absolutely love the way he is looking at her.

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I'm not going to pretend that this will be easy, because I know it won't. It will make me sad, but it will also be fun, Not sure that makes sense to everyone. I have learned, though, that things can be fun even when they make you sad. I know I will see lots of the therapists that worked with both kids as well as teachers they shared and perhaps families we all knew.  These people were an important part of my life for a long long time, and in a way I lost them too

So I am re-entering Maggie's World for a few hours today.  I miss being part of it.

Ahhhh, Monday

I know I'm not normal. I absolutely love Monday morning. Especially after a wild weekend. The busiest weekend in recent memory has ended. It was a good one, but wow, I am certainly tired.

Saturday night Steven and I hosted the holiday party for the lawyers in Steve's office. there were about 35 people invited for a catered dinner. Originally we were going to do it here and move Maggie and all her equipment and supplies upstairs for the evening, move the furniture down to the basement, put a tent over the deck and squeeze everyone in. My mom offered her big party house instead. Originally I said no but upon reflection (and my sister saying ARE YOU OUT OF YOUR MIND?) I jumped at it.

There was still lots of rearranging to do, but Maggie was not disrupted. Parking is an Olympic sport in this neighborhood but plentiful at my mom's house, which is so much easier. Also, since it was absolutely pouring rain all weekend, and Maggie's bathroom sprung a leak, I am especially glad we didn't do it here. It all went great, though I still have to get Tim back over there to put everything back where it goes.

My mom was so generous to do that even though all she really got out of it were a few decorations. Her beautiful house looked more beautiful than ever. Walking up the front porch folks were welcomed by several poinsettias and a beautiful wreath and then the entry hall had even bigger poinsettias and small trees (which were then given as gifts when folks left)

The party went perfectly and everyone had a great time. 

Maggie was not that pleased with the whole arrangement, though, as she was stuck at home with the nurse. She and Steve were gong to go out on Saturday morning, but they did home repairs instead. Steve decided to replace the hot water dispenser Saturday morning  had Maggie help him. I freaked out a little when he handed her his power drill, but she thought that was hilarious. And if you need to ask, the answer is NO, he did not let her actually use it. But she did get to press the button while he was holding it and that cracked her up.

Unfortunately for Maggie the installation took all day and she never got to go out, and then Sunday morning was the craziest part of the stormy weekend, so she spent the weekend indoors. The rain cleared around noon, but Steve and I had tickets to the matinee of The Book of Mormon so Maggie was stuck inside again. That play is absolutely hilarious. If you are easily offended I would stay away, but there are some raucous laughs in that play.

Nothing is on the calendar for this weekend, so we will take Maggie out of the town to make up for her weekend of indoor solitude. I think we might have to do our trip to see the Christmas windows downtown.

Back to Reality, in super slo-mo

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We are all still exhausted from all the activity and excitement of the weekend. There is a giant basket of cards and things that we need to go through with Maggie, but she has been so busy or so tired that we haven't had time.  I opened all of them but I need to sit down with her and read them to her.

Life slowly returns to normal after the Big Birthday Bash. It's time now to get back to the day to day realities, like preparing her conservatorship papers for the court. Oh Joy.

Maybe tomorrow.

Still, things are getting accomplished, albeit slowly. I did manage to finish up the Social Security with minimal effort. Now we wait to see if the US Government thinks Maggie is disabled or not.

There is one other matter to deal with. I mentioned the small accident with the car last week after leaving the social security office. I did get the repair estimate, which is $3200 (eek!), The insurance will take care of most of it, but you know we will pay that back over the next few years.

The biggest problem is that the car will take like 9-10 days to fix. I have no idea what we are going to do without the van for that long. Maggie will be in school during the week, but there'as at least one weekend in there.  I could rent a car, but it doesn't really help me unless I can transport Maggie. If she stays healthy it's fine. We do have Golden Gate Park in our backyard and there are lots of things to do within walking distance. But is she gets sick, we are in trouble.

The car is definitely damaged but  it's completely operational and drives fine.   I could wait to have it fixed, but I will still have this problem at some point. What to do, what to do?

 I'll decide when I have more energy.