Showing posts with label blog carnival. Show all posts
Showing posts with label blog carnival. Show all posts

Tuesday, August 10, 2010

A Game of Inches

Welcome to those of you here from the Disability Blog Carnival!

I have often written about strangers and the things they say or do when they encounter Maggie in her wheelchair.  Often those encounters are strange, but sometimes they  are quite pleasant.  The other day a woman watched as I loaded Maggie and her wheelchair into the van and she said, “Wow, she is a lucky girl.” I smiled. That’s not something I hear very often.  The woman was referring to Maggies’ ability to be out in the community thanks to the adapted van. And she was right, Maggie and I are both lucky to have it. It’s good to be reminded of that sometimes.

 It was funny, though, because as this woman marveled at the automatic ramp starting to lower itself, I was swearing under my breath. Someone had parked partially obstructing the wheelchair area next to the handicapped zone and I knew there wasn’t going to be enough room to load Maggie without moving the car.  It was only a matter of inches, but it makes all the difference in the world.

The ramp on Maggie’s van is 52inches long. The chair, with Maggie in it is another twenty four inches. There 
needs to be enough room to lower the ramp and then clear the chair off  the end of it.  That means we need a minimum of 76 inches, or 6’4” of space to get in and out of the van.  If someone parks  even a few inches into that space I cannot get her out. If it’s close, I can get her all the way to the end of the ramp and pick up her chair and lift it  just an inch or two over the lip at the end of the ramp.  Maggie is little, but with the chair and the equipment this is  about 200 lbs. Since my shoulder injury and subsequent surgery, I decided this is not a smart thing to do.

An additional 6 ft is space is hard to come by in San Francisco.  It seems every inch of this city has something on it. When parking at the curb, we have to make certain there isn’t a tree, a pole or a newspaper rack blocking the ramp. (see picture).There is nothing more exciting than finding a great parking place  and nothing more deflating than realizing it won’t work because you can’t get the lift open.

 Sometimes there is plenty of room, but some unseen and very small obstruction interferes with the proper operation of the ramp. Bricks and sidewalk breaks are the biggest issues. The ramp gets stuck on the edge of a brick and fails to open completely as in the second picture.  My husband was marveling at the damage to the front of my leather shoes. He couldn’t figure out what I was doing until he saw my remedy for fixing the ramp when its stuck on something. Rather than bend over and lift the heavy ramp, I simply put my foot under the ramp where it’s stuck on the bricks or cement and flip it open over the tiny obstruction. Wreaks havoc with the shoes, but saves the shoulder.  

Though she doesn’t have independence,(and I sincerely wish she did)  Maggie is luckier than many others who require the use of an adapted vehicle because she has someone to deal with things like this. I can hop in and back up the van a few feet, or kick the ramp loose from the bricks. A more independent wheelchair user could not do that.  If, for example,  someone is able enough to drive their own van, they have to be able to get in and out of it. If s/he can’t get into the car that small infraction or obstruction can be insurmountable.

A couple of inches can make the difference between total independence and total exclusion.   

Thursday, February 12, 2009

Resources

The internet is an amazing thing. We have all just accepted this as a resource tool, but there are times when you have to just sit back in wonder at the information at our fingertips. I am sitting on my couch in front of the drafty windows, but I’m not getting up because I keep finding more and more information. I can’t even remember what I started looking for, but I’m way into surf mode, now.

As a parent of a disabled child, the internet has allowed for parents to connect with one another far easier than in the past. If you or your child have a rare syndrome or disability, you can find someone across the street, country, or across the world who is dealing with the same issue. It is very helpful to know you are not alone out there.

Because of writing about Maggie I have connected with a couple of other resources. I found some and Some found me. This is due in part to a “blog carnival”. The way I understand it a blog carnival is like a magazine or maybe a bulletin board highlighting various blogs on a specific topic. This is not just for disability, the disability blog carnival is one of hundreds there. There is everything from taxes to traveling to Europe on a budget. If there is a topic you are interested in go to http://blogcarnival.com/.

I’ve really only looked at the disability blog carnival. The way it works is one blogger hosts it each month and other bloggers submit entries of their own or someone else’s to be highlighted. This months is found at River of Jordan: Disability Blog Carnival #53: Pot Luck and there is a link to a post I did last month. It’s a wonderful way to connect with other families dealing with similar issues.

Another resource is www.5minutesforspecialneeds.com and the other “5 minute for” sister blogs they have. Again, this is a community effort to share information and experiences on given topics. I know there are thousands more out there. If people have favorites, feel free to post them in the comments.