Travels with Maggie

This is from the way back machine.  I was reminiscing about this story with my mom the other day and was sure I had already shared it, but if I did I cannot locate it.

When Maggie was three years old, she was invited to go to Lourdes, France with the Knights of Malta. The Knights of Malta is an organization of Catholic men and women (Dames) whose mission is to serve the poor and the sick.  Every year the Knight of Malta take people on a pilgrimage to Lourdes to bathe in the healing waters.

For those of you who aren't familiar with Lourdes, it is a very sacred place for the Catholic Church. It is where the Blessed Mother appeared to Saint Bernadette several times over the course of a few weeks. Bernadette was a young girl but she convinced the local Bishops of the apparition and they built a huge cathedral. The waters of Lourdes are believed to have healing powers. People travel from all over the world to bathe in the waters of Lourdes. There are many miracles of healing associated with those who have visited Lourdes.

One doesn't really turn down an invitation to Lourdes. I mean, really, why would you? A week in the south of France having a once in a lifetime experience with the possibility of a miracle cure. Why yes, yes we will go and thank you very much.

When Maggie was little and did not have the trach and all of its required care, it was much easier to travel with her. She had a wheelchair, but she was just a tiny little girl what we could easily carry around. She sat in a car seat on the airplane and didn't require suctioning or oxygen or anything. We had never actually gone anywhere, though so this was -- well, a leap of faith, if you will. Maggie was very fragile, to be sure, but it was under control. I don't know if this is true in all of the chapters of the Knights of Malta, but many of the Knights and Dames from the Western part of the U.S. were doctors and nurses. That certainly made the decision to go a bit easier.

Steve was going to hold down the fort at home, caring for the boys while Maggie and I jetted off to France with 40 other "malades" (those who needed healing) and probably 50 Knights and Dames of Malta and their spouses.  Maggie was not miraculously cured at Lourdes, but I think I attained a new level of acceptance, which is a miracle in its own right. And I can tell you this: it was a week of pageantry and beauty and I consider it one of the most amazing things I have ever done.

I know there are many who would scoff at the whole idea of this and that's your right. Faith comes in all different forms. It is as simple or as complex as an individual chooses to make it. Some believe unconditionally, others scoff at the tenets and beliefs relying on science. Many are somewhere in the middle.

The best example of this came from Tim, who was just six years old when Maggie and I took this trip. He knew the story of Lourdes but he had a lot of questions, as you might imagine. He wanted to make certain I was considering all angles of this matter. We sat down to talk about things before I left and we had this conversation:
 Hey mom, you know how you are going to Lourdes to get a miracle?".
 Yes.
And you know how Lourdes is in France?
Yes.
If Maggie gets a miracle and learns how to talk, will she only speak FRENCH? (Sub text - Maybe you should head to Cleveland for your miracle)

Really, an excellent question.

I just smiled and said, "Don't worry Tim, if that happens we will all learn French."

And really, we have all been speaking Maggie's language ever since.

C'est bon.

.

Good news shoutout!

Maggie will be 19 in a couple of weeks. In those 19 years, I have been fortunate enough to learn what amazing things happen in children's hospitals. Maggie was born with body parts disconnected or connected incorrectly, with some things missing and with duplicates of others.  Little by little, step by step, the doctors fixed what then could and improvised elsewhere. A generation earlier she wouldn't have lived a single day and now she is about to graduate from high school. It is truly miraculous.

These miracles happen ever day in children's hospitals all over the country. Perhaps they seem somewhat less miraculous as they become routine. But the miracles continue every day, even if the awe has diminished.

One such miracle happened last night. Maggie's friend Justin received his lung transplant. Think about that: A LUNG TRANSPLANT. Talk about miraculous!

Through the wonders of social media and the generosity of his parents, I know that he is out of surgery and likely back in the ICU as I write this. He still has a long road to recovery, of course, but the surgery is done and went well.

 Please send prayers/good vibes for Justin and his family. Include the family of the donor as well because in order for this miracle to happen, someone had to lose their life.

Godspeed Justin. You have received the greatest gift imaginable. Get better and enjoy it!

This picture is part of a big facebook movement to get shoutouts to Justin from all over the place. Everyone is welcome and encouraged to join in.  If you want to send him your good wishes email a picture to shoutout4justin@gmail.com or go to shoutoutjustin on facebook.