Tuesday, April 5, 2011


Maggie is a huge joyful presence in our lives and the lives of many others. I always try to write about the joy or humor in Maggie life because 1) the world can always use more of that and 2) in the world of disabled children, and especially from the viewpoint of the outsider looking in, this part of life is too often overlooked.

But of course this life is not all joyful. There are some achingly sad moments as well. We are living through one now.

Yesterday I learned the Lueza passed away suddenly in the night. Lueza is a girl Maggie's age, a girl full of the same joy and light and life as Maggie. She is also a girl with cerebral palsy, a girl who needed a trach shortly after Maggie did and a girl who was in and out of the hospital all the time. She has parents who adore her and care for her lovingly. She has a sister who is devastated. All of my thoughts and prayers are with them today.

Rest well, sweet Lueza.


  1. beautiful -- to see this face everywhere, here, there, and to feel her in my heart --

  2. Sally, what a wonderful, joyful picture of Lueza. I'm so sorry. I just can't imagine. . .

  3. Thank you Sally. I just saw your post about Lu. Sending love and thanks.



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